Links for Spiritual Caregiving, Palliative Care, Pastoral
care, Complementary Therapies, Caregiving, Bereavement and Hospice
ADEC - Association for Death Education
and Counseling - excellent resource base per bereavement, newsletter and conference information Beyond Indigo - changing the way you feel about grief and
loss Crisis, Grief & Healing - this page is meant to be a place
men and women can chat or browse to understand and honor the many different
paths to heal strong emotions. Complementary & Holistic Therapies Activitytherapy.com
- comprehensive
site with a good index Upfront - Complementary Therapies ABCD Exchange : January 1999 - a good discussion of the relevance of complementary therapiesNational Center for Complementary
and Alternative Medicine Excellent database for CTs
Art Therapy on the Web - good connections for the artist in all of us.Medbioworld - complete and comprehensive page of links for complementary therapiesHospice of Westchester - lists some additional therapies and basic theory behind their useIAHPC Bookstore - lists some good books about CTsMednets - JournalsComplementary and Alternative Therapies in Nursing Education - scholarly article full of references for nurses and educatorsWholenurse.com - Holistic and alternative medicine articles, fairly commercial but may be good source of material for CAMCaregiving & Family - legal, references, etc... Aging with Dignity - Find out about FIVE WISHES: America's most popular advance directive Caregiving.com - A newsletter
of issues and resources for caregivers
Viatical information - Viatical information
Dying Well - Ira
Byock's homepage, very informative Hospice
Patients Alliance
A patient
advocacy hospice watchdog group that has a "right to life" slant
Last Acts - a national coalition
to improve the quality of end of life care The Legacy Kit - a 24
page booklet to help one organize documents and memories - for end of life
planning National Viatical.org - Viatical information
http://www.supportivecarecoalition.org/default.htm - Improve living with life-threatening illness
http://www.viatical.org/
- Viatical information http://www.whosedeathisitanyway.com/
-
PBS Special Hospice, Nursing & Palliative Care - organizations and reference http://www.aahpm.org - American Academy for Hospice and Palliative Medicine this is the comprehensive site for palliative and hospice care, but we don't need to tell you that! http://www.abcd-caring.org/
- Americans
for Better Care of the Dying is a non-profit public charity
dedicated to social, professional, and policy reform aimed
to improve the care system for patients with serious illness,
and their families. A very important site, check out
20 things that an internist could do to improve the quality
of a patients end of life experience (under public policy link). http://www.abhpm.org/ - The American Board of Hospice and Palliative Medicine (ABHPM) was formed in 1995 to establish and implement standards for the certification of physicians http://www.ahna.org
- American Holistic Nurses Assn. "the heart of nursing,
the science of holism," yearly conference that promotes holistic
practices fror caregivers http://www.americanhospice.org/
- The American Hospice Foundation The
Center to Advance Palliative Care (CAPC) is dedicated to increasing
the availability of quality palliative care services in hospitals
and other health care settings for people with life-threatening illnesses,
their families, and caregivers.. http://www.dyingwell.com - Ira
Byock's homepage, good resource http://www.eapcnet.org/index.html
- European Association for Palliative Care
http://www2.edc.org/lastacts/ -
Innovations in End-of-Life Care an international journal of leaders
in end-of-life care http://www.epec.net/EPEC/Webpages/index.cfm
- Our mission is to educate all healthcare professionals
on the essential clinical competencies in palliative care. Elisabeth Kubler-Ross Foundation - The EKR foundation
is dedicated to preserving and promoting the pioneering life work of
Elisabeth Kübler-Ross MD and others committed to compassionate care
for those who are near the end of life, those who have died, their loved
ones, and their caregivers.
End of Life Nursing Education Consortium Project (ELNEC) is a comprehensive, national education program to improve end-of-life care by nurses, and is funded by a major grant from The Robert Wood Johnson Foundation. Primary project goals are to develop a core of expert nursing educators and to coordinate national nursing education efforts in end-of-life care. NYU Literature, Arts, and Medicine Database, keywords
death and dying http://www.edc.org/lastacts/
- Innovations in End of Life Care - The purpose of
Innovations in End-of-Life Care, an international journal
and on-line forum, is to improve the quality of care provided
to patients near the end of life and to their families, through
the dissemination and critical examination of innovative practices
being implemented throughout the world. http://www.gwish.org/ - The George
Washington Institute for Spirituality and Health (GWish) is a university-based organization working
toward a more compassionate system of healthcare.
"The spiritual dimension cannot be
ignored, for it is what makes us human." Viktor
E Frankl
http://www.growthhouse.org/ - Growthhouse- “The Yahoo of Death and Dying”, all purpose good site http://www.helpthehospices.org.uk/ - Help the Hospices Charity in the UK http://www.hospice-america.org
- Hospice Association of America http://www.hospicecare.com/ - International Association Hospice and Palliative Care - good newsletter and calendar of events http://hospicecares.org/ - A comprehensive site with excellent, well organized links http://www.hospicecollegeofamerica.org
-HCA is the distance learning subsidiary of
Hospice Foundation of America http://www.hospicefoundation.org
- HFA- Hospice stories, Journeys Newsletter per issues
in the grieving
process, Clergy to Clergy section, good links http://www.hospiceinformation.info/
- world class information service for professionals and
patients http://www.hospicenet.org/ - good
links on hospice topics http://www.hospicepatients.org/
Hospice
Patients Alliance http://www.hospiceweb.com/links.htm
- Hospice Web Links http://www.hospiceworld.org/ - Hospice
Education Association http://www.hpna.org/
- Hospice and Palliative Nurses Assn. http://www.hospicecare.com/ -
International Association for Hospice & Palliative Care http://www.immunet.org/ - A non-profit
AIDS service organization that maintains a website
specifically designed for AIDS caregivers. Currently,
Immunet produces online continuing medical education courses,
maintain specialty link libraries, and publish AIDS/HIV treatment
newsletters. http://www.lastacts.org/ - a national coalition to improve the quality of end of life care The Legacy Kit - a 24 page booklet to help one organize documents and memories - for end of life planning http://www.lib.mcw.edu/html/independent/pathfinders/palliative.html
- Medical College of Wisconsin PALLIATIVE
CARE DEATH AND DYING http://www.milbank.org/endoflife/
-This report describes an advance
in clinical policy for care at the end of life: the adoption of Core
Principles for End-of-Life Care by a substantial number of medical specialty
societies.
http://www.missoulademonstration.org/index.phtml
-Welcome! You have found an innovative community project that
is working to improve how people experience dying, caregiving,
death, and bereavement. We focus on community-based research and
public engagement to foster social change. http://www.nahc.org/home.html -
National Association of Homecare and Hospice http://www.nap.edu/readingroom/books/approaching/appc.html
- Examples of Initiatives to Improve
Care at the End of Life http://www.newciv.org/GIB/death.html - the Global Ideas Bank - probably the most extensive
page of links and information that we've seen, an absolute
must to visit NOW... http://www.nhpco.org
- NHPCO- excellent data base for administrators and
hospice personnel, hospice directory, conference information,
and very good, well-described links http://www.nlm.nih.gov/medlineplus/hospicecare.html
- Medline+ hospice page...excellent!! http://www.nursingexcellence.com
- good site, excellent calendar http://www.nursing-standard.co.uk/
- Nursing Standard, UK http://www.palliativecarenursing.net/
- good site about all aspects of palliative care http://www.pbs.org/witheyesopen/
- PBS series http://www.rcn.org.uk/index.php - Royal College Nursing,
lots of conference listings in the UK http://www.selfgrowth.com/death.html
- over a hundred articles and links related to death
and dying http://www.soros.org/death/ - Project on Death in America of the Soros foundation http://www.stolaf.edu/people/leming/death.html
- A good list
of links http://www.supportivecarecoalition.org/default.htm - Improve living with life-threatening illness http://www.capitalhospice.org/ - The Hospices of the National Capital Region, excellent educational programshttp://www.thehospice.org/caregiv/index.html - Caregiving at Life's End, the National Train-the-Trainer Program http://www.thirteen.org/onourownterms - Bill Moyers' On Our Own Terms http://www.trinity.edu/~mkearl/death.html - Sociology of Death and Dying http://www.wholenurse.com - Alternative health and good search engine for nursing topics Humor http://www.findagrave.com/
- looks like a site with a sense of humor and could
be interesting for geneaology research http://www.myDeath.net/ - Prepare
to die! http://www.nejman.com/todiefor/
- To Die For! is an irreverent , stream-of-consciousness
celebration of cemeteries and the lighter side
of death. It is not a definitive or comprehensive study
of the subject, but rather a light-hearted glimpse at
a traditionally gloomy topic. Life Review http://www.capturinglifestories.com/autobiographykit.html - Audio autobiography kits http://www.totem-software.com/index_flash.html - software for sharing life's stories http://www.lifebio.com/ -questions to help in writing the biography of a loved one http://www.sharedmemories.com.au/ - many tools for life story writing www.aapc.org - American Association of Pastoral Counselors (AAPC).
Represents and sets professional standards for over 3,000 Pastoral
Counselors and 100 pastoral counseling centers in North America and
around the world. www.acpe.edu -
Association for Clinical Pastoral Education
(ACPE). A multicultural, multi-faith organization devoted to improving
the quality of ministry and pastoral care offered by spiritual caregivers
of all faiths. http://www.alayainstitute.org/ - The Alaya Institute offers up-to-date resources that support individual growth, spiritual development, End-of-Life education and policy, compassionate service, and access to hospice and grief support. Also offering an end of life care practicioner program whichoffers the absolute best in end of life care education with leaders in the field such as: Ram Dass, Ange Stephens, Frank Ostaseski, Rachel Naomi Remen MD, Cheryl Nelson, Charlie Garfield, and Ramita Bonadonna. The program is centered in the SF Bay area and consists of monthly sessions with certification at the end of a year. http://www.bardo.org/ - The Bardo of Death Studies - "Our mission at the Bardo of Death Studies is to assist in the development of discourse, discussion, and archival materials related to personal experiences in Death and Dying. We serve as a friendly net repository for these personal reflections both from the professional and the lay public) and a crossroads resource for others who happen by in search for personal reflection in their own time of need." http://www.beyondtheveil.net/ - "A Near Death Experiencer answers questions most people are afraid to ask" http://www.buddhanet.net/ebooks_g.htm
- Here's one you have to check out for
it's sheer weight in gold - another one of those "read-it-by-Acrobat
Reader" sites. The book called From Womb to Womb is the
one to note for references to the bardos. For specific references
to death and dying and ebooks see: http://www.buddhanet.net/r_booksd.htm www.cappe.org -
Canadian Association for Pastoral Practice
and Education (CAPPE). A national multi-faith organization which is
committed to the professional education, certification and support
of people involved in pastoral care and pastoral counseling. http://www.centerforcompassionatecare.org/
- "Please journey through our website to acquaint yourself
with our dream,
our professional staff, and the many services we offer."
Check out the programs and events page which seems to be very
active in this Las Vegas organization
http://www.careofdying.org - At
Supportive Care of the Dying: A Coalition for Compassionate
Care, so are we are a coalition of like-minded
Catholic health care providers and service organizations dedicated
to promoting cultural change that embraces supportive care, compassionate
relief of suffering and pain, and symptom management for helping
people living with life-threatening illness. We recognize a better death
is possible. http://www.cpsp.org/ College of Pastoral Supervision and Psychotherapy, Inc.
(CPSP). A theologically-based certifying and accrediting covenant
community dedicated to "recovery of soul," and granting diploma status
in pastoral psychotherapy. http://dyingwell.com/spiritualcarehp0704.htm - Spiritual Care at the End of Life, an excellent article
http://www.gwish.org/ - The George
Washington Institute for Spirituality and Health (GWish) is a university-based organization working
toward a more compassionate system of healthcare.
"The spiritual dimension cannot be ignored,
for it is what makes us human." Viktor E Frankl
http://www.healthcarechaplaincy.org/who_we_are06.html
- HealthCare Chaplaincy and their excellent list of Links http://hinduism.about.com/religion/hinduism/cs/deathdying/
- links on the Hindu view of death
http://www.holyisland.org
one possible path here is to click on Links - Samye-
Spirituality - Buddhist Teachings - In-Depth Teachings
- VOLUME 2, NUMBER 3 DEC. 1998 Teachings on the bardo by
Khenchen Thrangu Rinpoche . At this point you'll nee Acrobat Reader which
if you don't you can download from www.adobe.com for free. Download
"Get Acrobat Reader" http://www.journeyhome.com/abigail/spiritual.html
- Spiritual Resources for the Dying -
This listing of resources is meant to help people dealing
with their own death or the death of someone they love. Those
listed here are sincere
spiritual teachers, healers, counselors, and authors
who have sought to help
us all with this last stage of life.
http://www.kathokgonpa.ca/LR%20Phowa%201998.htm
-Teachings on Phowa http://www.khandro.net/mustardseed_1.htm
- nice all around website
with Buddhist and other
teachings http://kkeys.home.texas.net/~kkeys/spirit/buddhism/bardo/0days.html
- excellent Bardo instructions for the first moments and days
following death of the body http://www.lib.virginia.edu/small/exhibits/dead/otherworld.html
- an incredible
look at the Tibetan Book of the Dead, also see http://www.lib.virginia.edu/small/exhibits/dead/dying.html
and http://www.lib.virginia.edu/small/exhibits/dead/western.html www.nacc.org - National Association of Catholic Chaplains (NACC) An association of pastoral ministers who participate in the church´s mission of healing whose mission is to promote professional development and support services for our members. www.najc.org/main/index.htm
- National Association of Jewish Chaplains
(NAJC). A professional organization for Rabbis, Cantors, and other
Jewish professionals that seeks to enhance the kedusha of Jewish Chaplains
that they may provide quality Jewish, religious, and spiritual care. http://www.orthodoxinfo.com/death/index.aspx
- very interesting orthodox Christian website, lots
of links to well written articles http://www.OmMaNiPadMeHum.com/
- turn your harddrive into a prayer wheel http://www.slimeworld.org/lrs - The Labyrinth Readers Society, learn the art of reading from sacred texts for those who are in need or dying. http://www.spcare.org/ The aim of the Spiritual Care Program
is to demonstrate practical ways in which the compassion
and wisdom of the Buddhist teachings can help those facing
illness or death, their families, and medical caregivers. http://www.urbandharma.org/
- Website
of Kusala Bhikshu and friends, plenty of information here about
Buddhism - very clearly presented and practical
http://www.well.com/user/suscon/esalen/participants/Halifax/dying.html - Joan Halifax, Being with Dying http://www.wholenurse.com - alternative health and good search engine for nursing topics http://www.whosedeathisitanyway.com/ - PBS Special http://www.wonderworksonline.net/books_calendars/death_dying.html - Wonderworks, Books and Calendars, Death and Dying http://www.worldprayers.org/index.html - The World Prayer Collective, excellent site!! http://www.zenhospice.org - very good workshops Traditions & History http://userpage.fu-berlin.de/~aeimhof/seelefr.htm - woodcuts from Ars Moriendihttp://death.monstrous.com/ars_moriandi.htmhttp://en.wikipedia.org/wiki/Ars_moriendi - excellent discussion of Ars Moriendi Etcetera... http://www.directcasket.com/index.htm
- Affordable Direct sales of Caskets
http://www.findagrave.com/
- looks like a site with a sense of humor and could
be interesting for geneaology research
http://www.funerals.org/ - Funeral
and Memorial Societies of America NYU Literature, Arts, and Medicine Database, keywords
death and dying
http://library.thinkquest.org/16665/ghosts.htm
- A Thinkquest original look at death and dying. http://www.myDeath.net/ - Prepare
to die! http://www.spikemagazine.com/1097dead.htm
- Review of Tim Leary's Film about his death.
http://www.OmMaNiPadMeHum.com/ - turn your harddrive into a prayer wheel http://www.gatewaysbooksandtapes.com/ - excellent metaphysical books http://www.bardotrainingcenter.com - bardo trainers http://www.jewelsofancientlands.com/ - beautiful and ancient artifacts http://www.hei-art.com/ - art for voyagers
Look for more good information in our
always updated and expanding
at the speed of light TGA CALENDAR
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